One of the hard things…

With a special needs “child” – she is 17 after all – there have been and will continue to be some hard things that differ from those with a typically developing child. One that I struggle with is the groans. … Continue reading →

She asked me

This gallery contains 1 photo.

My darling, special-needs-will-always-be-dependent-on-help, almost 17 year old (what??!!??) daughter asked me the BIG question in the middle of church this morning, “Will you and I ever be separated, Mom?” (Yeah, not that other question you were thinking of…) Cue the … Continue reading →

My daughter’s wooden snowman

This gallery contains 1 photo.

My daughter is taking an Applied Technology – Woods class this year. Her teacher said, “be sure to have your parents pick up your projects before Christmas break!” (I feel relatively certain he said CHRISTMAS, not Winter since he was … Continue reading →

Not a scooter, but maybe Ponyish?

She wants a scooter. Desperately. I said no. “But Moooom!” I took her to the toy store where the manager explained they didn’t have any scooters tall enough for her. “But Moooooom!” We looked for adult-sized scooters, even though it … Continue reading →

“Am I ever ….?”

This gallery contains 1 photo.

Funny how just today I was thinking how exhausting my 16 year old extra-needs daughter’s life can be. And then she shows an openness that more adults with much higher intelligence levels would be wise to pursue. It is exhausting. … Continue reading →

DNA, Genetic Testing, Bwahaha!

This gallery contains 2 photos.

Natalie has had LOTS of genetic testing.  There’s never been a diagnosis that encompasses more than one or two of her … issues. I remember her old neurologist – back when she had seizures – said he was sure she … Continue reading →